Logo
    Search

    Previewing the "Ethics of Dementia & Social Media" Panel Discussion

    enFebruary 12, 2023

    About this Episode

    All Home Care Matters is featuring a 9 person panel of the world's leading dementia advocates, influencers, educators, and experts to discuss the "Ethics of Dementia and Social Media."

    The "Ethics of Dementia & Social Media" came about after having asked the question as to whether a person with dementia should have images and/or videos of themselves posted to social media if they are unable to provide consent?

    If the post is done in a positive way, does this change one's opinion as to whether it should be posted or not?

    Isn't consent still consent regardless of the purpose and perspective of what is being posted?

    Should there be guidelines, policies, and safeguards in place protecting these individuals with dementia from having their images posted to social media either as a photo or video?

    The 9 person panel discussion we hosted addressing these questions and this issue will be released on February 14th, 2023 on our Official YouTube channel and on any of your favorite podcast streaming platforms.


    Recent Episodes from All Home Care Matters

    Conscious Caregiving with L & L "Compassion, Kindness, & Seniors"

    Conscious Caregiving with L & L "Compassion, Kindness, & Seniors"

    Conscious Caregiving with L & L is "Tackling the Tough Conversations."

     

    The topic of this episode is on "Compassion, Kindness, & Seniors" and features an All-Star Panel.

    Stephen G. Post, Ph.D.

    Post’s most recent book is Dignity for Deeply Forgetful People: How Caregivers Can Meet the Challenges of Alzheimer’s Disease (Johns Hopkins University Press, May 2022). His work on caregiver ethics and spirituality has been supported by grants from the NIH National Institute on Aging and the National Institute on Mental Health, as well as the Human Genome Institute.

    His writing and advocacy are recognized as the baseline for national ethics guidelines in dementia care in the United States, Canada and Japan, among others. Post’s book The Moral Challenge of Alzheimer’s Disease (Johns Hopkins University Press) was designated a “medical classic of the 20th century” by the British Medical Journal (2009), whose editors wrote, “Until this pioneering work was published in 1995 the ethical aspects of one of the most important illnesses of our aging populations were a neglected topic.” Post is recipient of the Alzheimer’s Association national distinguished service award “in recognition of personal and professional outreach to the Alzheimer’s Association Chapters on ethics issues important to people with Alzheimer’s and their families.”  

    Loretta Woodward Veney:

    Loretta Woodward Veney is an inspirational speaker and certified LEGO® Serious Play® facilitator who offers a wealth of information, encouragement, and humor to her audiences. Loretta is the author of Being My Mom’s Mom, Refreshment for the Caregiver’s Spirit, and Colors Flowing from My Mind. 

    Kim Hamer:

    Kim is the author of "100 Acts of Love: A Girlfriend's Guide to Loving Your Friend Through Cancer or Loss," an invaluable must-have life guide offering practical tips to support employees or friends experiencing life’s little “hiccups.” As a captivating speaker, Kim’s stories empower audiences to navigate the complexities of life, fostering a culture of compassion and resilience in both personal and professional spheres. 

    Cyndy Luzinski:

    Cyndy Hunt Luzinski is an advanced practice nurse with a nursing background which ranges from critical care to community case management. In honor of her dad who experienced dementia, she founded and serves as executive director of Dementia Together, a nonprofit organization in Northern Colorado which offers education, enrichment, and hope, while cultivating joy and building stronger connections for people living with dementia, their care partners, and the community. As the first SPECAL (pronounced “speckle”) practitioner in North America, Cyndy is leading the way to share the simple, positive, UK-originated SPECAL Method with anyone who wants to learn how to make living well with dementia the expectation, not the exception. 

    Lance A. Slatton and Lori La Bey thank you for joining them for another episode of Conscious Caregiving with L & L where they are "Tackling the Tough Conversations"

    Visit Lori La Bey's Official Website:

    https://www.alzheimersspeaks.com

    Visit Lance A. Slatton's Official Website: 

    https://www.lanceaslatton.com

    Visit All Home Care Matters' Official Website: 

    https://www.allhomecarematters.com

    Dementia and The Arts

    Dementia and The Arts

    All Home Care Matters is helping to shine a light on the importance of the arts in the dementia space.

    We are honored to welcome three instrumental individuals who are helping to incorporate the arts into dementia care and the dementia space. The members of this esteemed panel of guests are Alexis Baker, MT-BC, CDP who is founder of Bridgetown Music Therapy, Laurette Klier founder of NANA'S Books, and Dr. Marc Rothman founder of Dementia Spring and the CEO of Lizzy Care.

    About Alexis Baker, MT-BC, CDP - Founder of Bridgetown Music Therapy:

    Alexis Baker is a board-certified music therapist of 10 years and owner of Bridgetown Music Therapy, which she founded in 2017. She is passionate about using music to make a difference in the lives of older adults, especially those living with dementia.

    About Laurette Klier - Founder of NANA'S Books:

    As the founder of NANA'S BOOKS, Laurette Klier brings a wealth of experience and expertise to elder care and compassionate communication. With a lifelong commitment to teaching and caregiving, Laurette holds undergraduate and master's degrees in speech communications and education from Boston College. A certified dementia practitioner and cognitive stimulation therapist, Laurette is dedicated to enhancing the lives of elders through innovative techniques and purposeful resources.

    An Aetna fellow and teacher consultant for the National Writing Project, Laurette blends academic knowledge with hands-on caregiving experience. Her pioneering approach to re-imagining the culture of elder engagement has earned her a 2021 Maude's Award, a 2023 National Mature Media Award and a 2023 Service to Seniors Award from the National Society of Certified Senior Advisors.

    About Dr. Marc Rothman CEO of Lizzy Care & Founder of Dementia Spring:

    Dr. Rothman is a physician executive with deep experience in home- and community-based services for older adults, physician practice management and clinical operations, value based care and Advanced Alternative Payment Models, regulatory affairs, quality improvement, and post-acute and long-term care.

    Dr. Rothman is the Chief Executive Officer of Lizzy Care, a new model of Dementia Care Management that provides the people, technology and resources needed to keep those with Alzheimer’s and dementia safe and vibrant at home.

    Founded in 2022, Lizzy Care services clients in the New York, New Jersey and southern Connecticut area. Prior to Signify Dr. Rothman served as Senior Medical Officer at Aspire Healthcare where he led the nationwide provider network, the Aspire TeleHealth palliative care service line, as well as all centralized telephonic care services. Before Aspire he was the Chief Medical Officer of Kindred Healthcare, Inc., at that time the nation’s largest provider of integrated post-acute care services with over 2,400 locations in 45 states. There he led the medical affairs division and held responsibility for physician engagement, quality, patient experience and pharmacy services. Kindred acquired Gentiva Health in 2015, and was then taken private and sold to the Humana/Welsh/TPG consortium in 2018.

    Prior to joining Kindred, Dr. Rothman directed post-acute medical services at the Kaiser Permanente San Francisco Medical Center and practiced geriatric, post-acute and palliative medicine with the Permanente Medical Group. Dr. Rothman is the founder of the Dementia Spring Foundation, a 501(c)(3) that supports visual and performing artists who are portraying dementia and Alzheimer’s disease in a new light through their work. He currently serves as a Director for the Mission Healthcare Corp. in Southern California, with the Vistria Group, and until recently was a Director for the Healthdrive Corp., which was acquired by Cressey and Co. in 2023.

    Careswitch - The First A.I. Powered Home Care Agency Management System

    Careswitch - The First A.I. Powered Home Care Agency Management System

    All Home Care Matters is honored to welcome Miriam Allred the Head of Partnerships & Dan Ogren the Head of Design from Careswitch.

    About Miriam Allred:

    Miriam Allred is the Head of Partnerships at Careswitch, the first AI-powered home care agency management software. Prior to working at Careswitch she worked at Home Care Pulse, where she led partnerships, launched and hosted Vision: The Care Leaders’ Podcast, and managed events such as the Home Care Growth Summit. When she’s not working you can find her cycling, rafting, or cross-country skiing with her husband Daniel.

    About Dan Ogren:

    Dan Ogren is a designer and entrepreneur with 8+ years of experience creating visually compelling brands, experiences, animations, interactions and systems. He has worked in-house with Fortune 500 companies (adidas, IBM) and for world-class design consultancies (frog) designing B2B and B2C software solutions for health care, financial services, oil and gas, IT services, e-commerce and agriculture. Dan also co-founded Rappora, a software company providing non-medical home care agency management solutions, designed to simplify office work, reduce risk and improve the quality of care.

    About Careswitch:

    Careswitch is the first AI-powered home care agency management system. Its platform uses generative AI to speed up administrative work within a home care agency—saving time for administrators, ensuring better information and communication with caregivers, and ultimately improving quality of care for care recipients.




    Laurette Klier The Founder of NANA'S Books

    Laurette Klier The Founder of NANA'S Books
    All Home Care Matters was honored to welcome the founder of NANA'S Books, Laurette Klier as guest to the show.
     
    About Laurette:
     
    As the founder of NANA'S BOOKS, Laurette Klier brings a wealth of experience and expertise to elder care and compassionate communication. With a lifelong commitment to teaching and caregiving, Laurette holds undergraduate and master's degrees in speech communications and education from Boston College.
     
    A certified dementia practitioner and cognitive stimulation therapist, Laurette is dedicated to enhancing the lives of elders through innovative techniques and purposeful resources. An Aetna fellow and teacher consultant for the National Writing Project, Laurette blends academic knowledge with hands-on caregiving experience. Her inspiring perspective on re-imagining the culture of engagement goes beyond cognitive stimulation, to soul and spirit-tending, connecting care partners in all phases of life.
     
    About NANA'S Books:
     
    NANA’S BOOKS® is a treasury of nostalgic companion books. Mindfully designed to support older adults living with brain changes and their communities of care, we honor the individual through dignified reading and compassionate sharing. NANA’S BOOKS pair vintage literature and art with sensitivity and intention to elicit fond reminiscence and eased conversation.
     
    Grounded in faith and identity, our print and voice-enabled digital libraries affirm personhood and soothe the spirit. NANA’S BOOKS are for soul-tending.
     
    Our adaptive formats, hyper legible fonts and considerate layouts make visiting comfortable by enabling readers to savor books and good company once again.

    The Caregiver's Journal with Lance A. Slatton & Denise M. Brown: Chapter 1 "Diagnosis Day"

    The Caregiver's Journal with Lance A. Slatton & Denise M. Brown:  Chapter 1 "Diagnosis Day"
    The Caregiver's Journal is the show where we are sharing the caregiving experiences, stories, and wisdom of family caregivers.
     
    Hosted by Denise Brown & Lance A. Slatton of All Home Care Matters
     
    Chapter 1 - "Diagnosis Day"
     
    In this journal entry, we welcomed Bruce McIntyre and Roberta Carson who shared their experiences from their "Diagnosis Day".
     
    Bruce McIntyre:
     
    Bruce is the author of Receiving Peace, Thrive Anyway, Parkinson Positive, Graceful Transitions and Resilient Life. He serves as the CEO of the Oklahoma Parkinson’s Alliance. Bruce shares his expert guidance and warm humor with thousands of people each year. As a caregiver for his wife since 2004, Bruce understands the world of chronic illness and caregiving.
     
    Roberta Carson:
     
    After the death of her teenage son from brain cancer, Roberta started The ZaggoCare System, a nonprofit organization, to provide information and tools to help others better manage illnesses and injuries. Zaggo enables patients and families to become empowered, engaged, effective members of their medical teams to help them receive the best care possible.
     
    With an easy-to-use guidebook and organizational tools, the unique, award-winning ZaggoCare System helps patients and families through every step of a healthcare journey. Additionally, the Zaggo blog provides practical information to help patients and family caregivers navigate the medical world.

    Amit Shrivastava Founder & CEO of GoInstaCare

    Amit Shrivastava Founder & CEO of GoInstaCare

    All Home Care Matters is honored to welcome Amit Shrivastava as guest to the show to discuss his new revolutionary platform for helping families find and hire caregivers.

    Amit is co-founder and CEO of GoInstaCare. Before starting GoInstaCare, he owned a successful Home Care Company in Chicago, which he and his wife started from scratch and made it extremely successful.

    Unfortunately, they had to sell their company because of their son’s health as his body was not liking the cold and they moved to Austin, Texas a few years ago.

    Conscious Caregiving with L & L "The Bureaucracy of Care & Seniors"

    Conscious Caregiving with L & L "The Bureaucracy of Care & Seniors"

    Conscious Caregiving with L & L is "Tackling the Tough Conversations."

    The topic of this episode is on The Bureaucracy of Care & Seniors" and features an All-Star Panel.

    Amy D. Spring; Owner/Founder, Wise-Transitions:

    Amy Spring, the guiding force behind Wise-Transitions, is a physical therapist with a passion for improving the caregiving landscape. Her professional journey spans over 30 years in diverse healthcare leadership roles, including home care agencies, hospitals, and skilled nursing facilities.

    A graduate of D’Youville College in Buffalo, NY, Amy's rich experience provides her with an invaluable understanding of the healthcare system's regulations, dynamics, and potential blind spots.

    Donna de Villiers - Dementia Prevention Consultant, Vivira Brain Health:

    Donna de Villiers is a Dementia Prevention Consultant. She helps daughters and granddaughters of people living with Dementia prevent the disease by balancing hormones, building beautiful brain health habits, and tweaking lifestyles. With two thirds of Dementia cases being women, it's time to really start digging into what we can do to reduce the risk factors of this disease! Donna started working in Health and Social Care here in the UK in 2007 and after many roles, and many qualifications. She built her business to help combat disease and give quality of life back to people.

    Longevity isn't fun without the quality of life to go with it. The mission of Vivira Brain Health is to help reduce the tripling figures of Dementia diagnosis, and support as many women as possible in their pursuit to live full, healthy, and happy lives.

    Malika Moore – Licensed Clinical Social Worker and Founder of Aging & Amazing®:

    Malika Moore, MSW, LICSW, LCSW-C, is an Aging Life Care Professional™ and also a Licensed Clinical Social Worker in the District of Columbia and Maryland.

    Ms. Moore founded Aging & Amazing®, a company that strives to support older adults, caregivers, and the networks that surround them. Her niche and life mission is ensuring care and interaction with older adults is more than a checkbox.

    Ms. Moore has over a decade of experience as a professional, clinician, public speaker, and business owner and has a genuine passion for older adults and caregivers. Her work in behavioral health, community education, and healthcare have prepared her for her current venture of serving the aging population, family caregivers, and professionals who specialize in aging.

    Malika is a leader who enjoys uplifting and inspiring others. Ms. Moore was recognized and awarded the 2022 Aging Life Care Association "Rising Star" award. She also serves as a board member for All Home Care Matters and Home Care Partners. Malika holds dearly and values her family and friends and is personally invested in ensuring we all know that it is possible to live and be Aging & Amazing®!

    Mary Farquhar Family Caregiver:

    Mary Farquhar started as a colleague to her husband, Roger Fisher when he was diagnosed with Mild Cognitive Impairment in October 2018. As Roger’s disease progressed to Alzheimer’s, Mary reluctantly promoted herself to CEO of Roger Fisher’s Care.

    Dr. Anne Kenney - Geriatrician and Palliative Care Physician, Author and founder of Together in Dementia:

    Anne Kenny, MD is a geriatrician and palliative care physician, author of Making Tough Decisions about End-of-Life Care in Dementia and Founder of Together in Dementia - an educational/informational blog/coaching/course platform with a mission to provide physician-informed approach to care from someone who has also traveled the dementia journey.

    Dr. Kenny has a new book co-authored with Teresa Webb, woman living with and advocate for Frontotemporal Dementia. The book, Your True North: A Guided Journal for Those Living with Cognitive Loss or Dementia about Legacy, Love and Wishes for the End of a Life Well-lived, will be available in the fall. 

    Tracy Cram Perkins, Author:

    Tracy Cram Perkins, is a four-time dementia caregiving survivor with sixteen-years of experience caring for four family members with dementia. She is the author of Dementia Home Care: How to Prepare Before, During, and After. Dementia Home Care is the 2022 Chanticleer (pronounced chant-ih-clear) International Book Awards (CIBAs) winner for Instructional and Insightful How-To Manuals.

    It is Tracy's mission to supply caregivers with proven shortcuts to reduce the stresses of dementia care. She teaches hands-on solutions for reducing repetitive questions, melt downs, and wandering. She includes tips using simple, inexpensive fixes found at hardware and office supply stores. 

    All guests contact information and links are available on the official website of Conscious Caregiving with L & L: https://consciouscaregivingll.com/

    Thank you for joining your co-hosts Lori La Bey and Lance A. Slatton for another episode of Conscious Caregiving with L & L where we are "Tackling Tough Conversations" 

    Lizette Cloete The Passionate Owner of "Think Different" Dementia

    Lizette Cloete The Passionate Owner of "Think Different" Dementia

    All Home Care Matters was honored to welcome Lizette Cloete the owner of "Think Different" Dementia to the show as our guest.

     

    Lizette Cloete, the passionate owner of “Think Different” Dementia, helps families navigate dementia together, using science-backed strategies. Her formal training is as an Occupational Therapist, who graduated from the University of Pretoria in South Africa in 1992. With her extensive knowledge and experience, she has become an international thought leader in dementia caregiving. In 2023, she was awarded a grant from the South Carolina Alzheimer’s Resource Coordination Center to develop an innovative online education, group dementia coaching and collaborative community for family care partners, entirely accessible from a cell phone, which launches March 2024. Lizette holds numerous specialty dementia certifications and is the only Occupational Therapist in South Carolina to hold the Skills2Care certification, an evidence based framework to decrease challenging behaviors so common in dementia care. 

     

    With over 30 years of experience, Lizette is a sought-after national and international speaker on dementia-related topics. Her new podcast, Dementia Caregiving for Families is your primary way to connect. As a proud mother of two daughters and one son-in-love, Lizette is also a lover of animals. She and her husband currently reside in South Carolina with their two cats, one dog, and many backyard chickens.

     

    Summary of "Think Different" Dementia, LLC:

     

    “Think Different” Dementia, LLC was established in 2020 after the founder and owner, Lizette Cloete, OTR/L identified a societal need to change how we think about dementia caregiving. After spending time in dementia support groups online, the owner recognized the often negative nature of these groups and identified a lack of reliable and accurate information being distributed to the members of these free communities.

     

    Recognizing that dementia caregiving is complex, progressive and often results in “challenging behaviors”, we also believe that it is possible to help family caregivers of people living with dementia navigate the process while maintaining their own wellbeing and relationships. Using evidence-based practices, we know that having a systematic and caregiver focused approach to dementia caregiving makes the whole caregiving process easier. We provide family caregivers the simple tools they need to live their lives to the fullest.

    Compassion & Choices with President and CEO Kim Callinan and Jessica Empeño National Director of Engagement and Education

    Compassion & Choices with President and CEO Kim Callinan and Jessica Empeño National Director of Engagement and Education

    All Home Care Matters was honored to welcome the CEO & President of Compassion and Choices Kim Callinan and the National Director of Engagement and Education Jessica Empeño to the show.

    About Kim Callinan:

    Kim Callinan has served as Compassion & Choices president and chief executive officer since 2018. Kim launched Compassion & Choices’ Finish Strong initiative designed to empower patients to take charge of the final chapter of their lives, with a specific focus on helping people plan for a possible dementia diagnosis and closing the disparities in end-of-life care and planning that exist for communities of color.

    Kim holds a master’s degree in public policy from Georgetown University, an MBA from the University of Maryland Global Campus, a bachelor’s degree in government from Oberlin College and a certificate in the fundamentals of gerontology through a joint program offered by the American Society on Aging and the University of Southern California Davis School of Gerontology. She also recently received an end-of-life doula certificate from the University of Vermont. 

    About Jessica Empeño: 

    Jessica Empeño is a medical social worker with over 23 years’ experience as a clinician, leader, educator and advocate specializing in end-of-life care, dementia, caregiver support, program development and leadership. Jessica has a Masters of Social Work degree from San Diego State University and certificates in Health Law & Policy, Dementia Positive Approach to Care, Human Services Management and Interdisciplinary Palliative Care. 

    About Compassion & Choices:

    Compassion & Choices improves care, expands options and empowers everyone to chart their end-of-life journey. We are a 501(c)(3) nonprofit organization. We envision a society that affirms life and accepts the inevitability of death, embraces expanded options for compassionate dying, and empowers everyone to choose end-of-life care that reflects their values, priorities, and beliefs.

    Discover PHOTAVIA and More

    Discover PHOTAVIA and More

    All Home Care Matters was honored to welcome back the team from PHOTAVIA and Lori Snow from Spiro100.

    Joe Hausch is President/CEO/CCO/Co-Founder, Investor and a Director. He has been part of day-to-day operations since 2014, raising funding, building a team and evaluating all opportunities in order to maintain controlled growth and profit expectations. He also owns and manages Hausch Design Agency specializing in building brands. Entrepreneur, Inventor, Artist, Designer, Musician; Joe has been doing Strategic/Creative Services for start-ups, small businesses and consulting not-for-profit organizations in Wisconsin since 1984.

    Clients have included NFL HOF QB Brett Favre to Bemis Corporation. Penfield Children’s Center to PHOTAVIA. As CEO/CCO he oversees PHOTAVIA’s day-to-day operations, maintaining awareness, and the shaping of its external and internal landscape. Joe has helped build over 500 brands, from startup to Fortune 500 and has personally been a vested part of 6 startups to date.

    John Wright, CAPS, CSSP, Channel Partner/Affiliate, National Sales/ Sanus Lifestyle Solutions, Owner, Senior Living and Technology executive with 21+ years of progressive leadership experience that optimizes financial and operational performance. Extensive experience in all aspects of senior living, age in place, and revenue cycle management.

    A successful career spent building healthcare strategies, launching impactful technology solutions, and growing diverse senior living businesses. Has strong entrepreneurial acumen and business development skills which led to partnerships with in-home care providers and senior living communities nationally.

    Roger Anunsen is a former trial attorney who, for over two decades, has been breaking new Applied Brain Science ground in higher education and by designing and testing non-pharmaceutical cognitive interventions. From 2011 to 2022, Roger taught college neuroscience courses based on two textbooks that he co-authored, The Aging Mind and Cognitive Activity Design. After 11 years, Roger stepped away from teaching and is now dedicating his time to research with companies such as PHOTAVIA. 

    Lori Snow is the VP of Strategic Partnerships.