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    About this Episode

    Deep brain stimulation (DBS) is complex brain surgery in which electrodes are placed at strategic, predetermined targets within a patient's brain. The electrodes are then connected to a battery pack which is surgically inserted under the skin of the chest, like a pacemaker.

    When DBS was first introduced as a treatment option for people living with Parkinson’s disease more than 20 years ago, it was a game changer.

    In this episode of Your Complex Brain, we’ll speak with Krembil Brain Institute neurosurgeon, Dr. Suneil Kalia, and neurologist, Dr. Alfonso Fasano, about the future of DBS – and how it could be used to help many more patients improve their quality of life, including those living with other neurological diseases.

    We’ll also hear from CBC journalist Harry Forestell about his DBS journey.

    Featuring:
    Dr. Suneil Kalia – Neurosurgeon & Senior Scientist at the Krembil Brain Institute & Associate Professor in the Division of Neurosurgery, Department of Surgery, University of Toronto. As a stereotactic and functional neurosurgeon, Dr. Kalia focuses on the surgical management of movement disorders, epilepsy and pain. He holds the R.R. Tasker Chair in Stereotactic and Functional Neurosurgery.

    Dr. Alfonso Fasano – Neurologist & Clinician Investigator with the Edmond J. Safra Program in Parkinson’s Disease, Morton and Gloria Shulman Movement Disorders Clinic, at the Krembil Brain Institute (Toronto Western Hospital). Dr. Fasano is a Professor of Medicine, Department of Neurology, at the University of Toronto. He holds the Chair in Neuromodulation at UHN.

    Harry Forestell – Long-time CBC journalist who has reported on some of the biggest stories of our time, and is the current host of CBC News New Brunswick at 6. At the age of 53, Harry was diagnosed with Parkinson’s disease and subsequently had DBS surgery. Harry is first and foremost a family man; he is married to Jennifer and they have two beautiful daughters.

    Additional resources:
    Krembil Brain Institute’s Movement Disorders Clinic (Toronto Western Hospital)
    Krembil Brain Institute’s DBS Surgery Information Page
    CBC story about Harry Forestell’s DBS experience & surgery
    VIDEO – Ha

    The Your Complex Brain production team is Heather Sherman, Jessica Schmidt, Dr. Amy Ma, Kim Perry, Sara Yuan, Meagan Anderi, Liz Chapman, and Lorna Gilfedder.

    The Krembil Brain Institute, part of University Health Network, in Toronto, is home to one of the world's largest and most comprehensive teams of physicians and scientists uniquely working hand-in-hand to prevent and confront problems of the brain and spine, such as Parkinson's, Alzheimer's, epilepsy, stroke, spinal cord injury, chronic pain, brain cancer or concussion, in their lifetime. Through state-of-the-art patient care and advanced research, we are working relentlessly toward finding new treatments and cures.

    Do you want to know more about the Krembil Brain Institute at UHN? Visit us at: uhn.ca/krembil

    To get in touch, email us at krembil@uhnresearch.ca or message us on social media:
    Instagram - @krembilresearch
    Twitter - @KBI_UHN
    Facebook - https://www.facebook.com/KrembilBrainInstitute

    Thanks for listening!

    Recent Episodes from Your Complex Brain

    Season 3 of the award-winning 'Your Complex Brain' podcast is back!

    Season 3 of the award-winning 'Your Complex Brain' podcast is back!

    We are once again bringing you inside UHN’s Krembil Brain Institute, one of North America's largest and most innovative neurological centres, to meet the scientists & physicians advancing discovery, the patients who inspire us, and the care teams who support them. 

    This season, we’re exploring some big new research in brain health, including: What young women need to know about preventing a stroke, Can loneliness re-wire your brain? And how YOU can reduce YOUR chances of Alzheimer’s. 

    We’ll also take you to the forefront of AI powered brain science, dive into the link between genetics and reading disabilities  and find out why getting a good night’s sleep is crucial for brain health.

    There are a million amazing things to know about your complex brain – and we couldn't be more excited to explore them with you. Season 3 launches March 19, with episodes every other Tuesday. Subscribe to Your Complex Brain so you don’t miss a thing.

    The Your Complex Brain production team is Heather Sherman, Jessica Schmidt, Dr. Amy Ma, Kim Perry, Sara Yuan, Meagan Anderi, Liz Chapman, and Lorna Gilfedder.

    The Krembil Brain Institute, part of University Health Network, in Toronto, is home to one of the world's largest and most comprehensive teams of physicians and scientists uniquely working hand-in-hand to prevent and confront problems of the brain and spine, such as Parkinson's, Alzheimer's, epilepsy, stroke, spinal cord injury, chronic pain, brain cancer or concussion, in their lifetime. Through state-of-the-art patient care and advanced research, we are working relentlessly toward finding new treatments and cures.

    Do you want to know more about the Krembil Brain Institute at UHN? Visit us at: uhn.ca/krembil

    To get in touch, email us at krembil@uhnresearch.ca or message us on social media:
    Instagram - @krembilresearch
    Twitter - @KBI_UHN
    Facebook - https://www.facebook.com/KrembilBrainInstitute

    Thanks for listening!

    Dr. Kathryn Curtis' 5-Minute breathing practice

    Dr. Kathryn Curtis' 5-Minute breathing practice

    Breathing exercises are simple techniques can help improve your overall well-being by promoting relaxation, reducing stress, and increasing mindfulness. Listen to this original 5-minute 'Breathing Space' practice created by Dr. Kathryn Curtis for listeners of Your Complex Brain.

    Dr. Kathryn Curtis is a clinical psychologist at the Comprehensive Integrated Pain Program at UHN, where she provides psychological services to individuals living with chronic pain. Dr. Curtis' research evaluates mind-body interventions, such as yoga and mindfulness, for populations experiencing chronic pain and mobility restrictions. She is a long-term student of eastern philosophy, meditation, and Vedic studies at Vidya Institute and integrating these eastern teachings into her clinical and research work is a passion of hers. In her spare time, Dr. Curtis enjoys spending time in nature with her family.

    The Your Complex Brain production team is Heather Sherman, Jessica Schmidt, Dr. Amy Ma, Kim Perry, Sara Yuan, Meagan Anderi, Liz Chapman, and Lorna Gilfedder.

    The Krembil Brain Institute, part of University Health Network, in Toronto, is home to one of the world's largest and most comprehensive teams of physicians and scientists uniquely working hand-in-hand to prevent and confront problems of the brain and spine, such as Parkinson's, Alzheimer's, epilepsy, stroke, spinal cord injury, chronic pain, brain cancer or concussion, in their lifetime. Through state-of-the-art patient care and advanced research, we are working relentlessly toward finding new treatments and cures.

    Do you want to know more about the Krembil Brain Institute at UHN? Visit us at: uhn.ca/krembil

    To get in touch, email us at krembil@uhnresearch.ca or message us on social media:
    Instagram - @krembilresearch
    Twitter - @KBI_UHN
    Facebook - https://www.facebook.com/KrembilBrainInstitute

    Thanks for listening!

    Your Complex Brain
    en-usNovember 28, 2023

    Harry Forestell on his Deep Brain Stimulation surgery for Parkinson's

    Harry Forestell on his Deep Brain Stimulation surgery for Parkinson's

    Harry Forestell is a journalist with CBC Television. In 2013, he noticed a tremor in his right hand and was unsure what it was. It was later determined to be Parkinson's disease. He was referred to Dr. Tony Lang and the team at Toronto Western Hospital, a movement disorder clinic. They confirmed the diagnosis and began treatment. The symptoms of the disease began to worsen, and he was frustrated by the amount of focus and attention it took to walk normally. 

    His doctor suggested deep brain stimulation (DBS) as a potential treatment option. He was hesitant at first, but as the symptoms worsened, he decided to explore the option further. He spent a weekend in November going through a series of tasks to see if he would be a good candidate for DBS. He was delighted to pass and was excited about the prospect of another treatment option. He spent a month in Toronto having the procedure done and was impressed by how quickly and with little fuss the surgery was completed. 

    He was back at work and was able to return to his regular social life and work obligations. The impact of the DBS was immediate and very pleasing. His tremors and shakes abated, and he didn't have to experience dyskinesia anymore. He was able to return to work and even appear on camera, which was a huge bonus for him.

    The Your Complex Brain production team is Heather Sherman, Jessica Schmidt, Dr. Amy Ma, Kim Perry, Sara Yuan, Meagan Anderi, Liz Chapman, and Lorna Gilfedder.

    The Krembil Brain Institute, part of University Health Network, in Toronto, is home to one of the world's largest and most comprehensive teams of physicians and scientists uniquely working hand-in-hand to prevent and confront problems of the brain and spine, such as Parkinson's, Alzheimer's, epilepsy, stroke, spinal cord injury, chronic pain, brain cancer or concussion, in their lifetime. Through state-of-the-art patient care and advanced research, we are working relentlessly toward finding new treatments and cures.

    Do you want to know more about the Krembil Brain Institute at UHN? Visit us at: uhn.ca/krembil

    To get in touch, email us at krembil@uhnresearch.ca or message us on social media:
    Instagram - @krembilresearch
    Twitter - @KBI_UHN
    Facebook - https://www.facebook.com/KrembilBrainInstitute

    Thanks for listening!

    Your Complex Brain
    en-usNovember 14, 2023

    Why Fran Rider has donated her brain post-mortem to the Canadian Concussion Centre

    Why Fran Rider has donated her brain post-mortem to the Canadian Concussion Centre

    Fran Ryder is the president of the Ontario Women's Hockey Association and has been involved in women's hockey for many years. She has played and volunteered in various capacities in the sport. She has also been involved in research and initiatives related to spinal injuries and concussions in hockey, working closely with Dr. Charles Tator, a world-renowned neurosurgeon and researcher, on these initiatives. 

    Dr. Tator has been a mentor and inspiration to her. She has also been a champion of the importance of brain donations for research and has donated her brain to Dr. Tator's research. She is passionate about the sport and the importance of safety and prevention of injuries in addition to advocating for the recognition and treatment of concussions and other brain injuries in sports.

    The Your Complex Brain production team is Heather Sherman, Jessica Schmidt, Dr. Amy Ma, Kim Perry, Sara Yuan, Meagan Anderi, Liz Chapman, and Lorna Gilfedder.

    The Krembil Brain Institute, part of University Health Network, in Toronto, is home to one of the world's largest and most comprehensive teams of physicians and scientists uniquely working hand-in-hand to prevent and confront problems of the brain and spine, such as Parkinson's, Alzheimer's, epilepsy, stroke, spinal cord injury, chronic pain, brain cancer or concussion, in their lifetime. Through state-of-the-art patient care and advanced research, we are working relentlessly toward finding new treatments and cures.

    Do you want to know more about the Krembil Brain Institute at UHN? Visit us at: uhn.ca/krembil

    To get in touch, email us at krembil@uhnresearch.ca or message us on social media:
    Instagram - @krembilresearch
    Twitter - @KBI_UHN
    Facebook - https://www.facebook.com/KrembilBrainInstitute

    Thanks for listening!

    Your Complex Brain
    en-usOctober 31, 2023

    Natalie Ladly on parenting a child with special needs & the importance of supporting research

    Natalie Ladly on parenting a child with special needs & the importance of supporting research

    Natalie Ladly is the president and fundraising chair for CDKL5 Canada. She lives in Heathcoate, a town outside of Collingwood, Ontario, with her husband Eric and their three children: Brynn, Reece, and Cullen. Brynn has CDD, a rare disease that prevents the brain from developing normally. She was diagnosed with the disease at nine months old, and since then, Natalie has been dedicated to raising awareness and funds for research. 

    Natalie is also a member of the CDKL5 Canada board, which gives her a sense of purpose and the ability to make a difference. Natalie is grateful for the support of Dr. Eubanks, a scientist who is dedicated to researching CDD and making a real impact in the lives of those affected by the disease. She believes that collaboration between the scientific community and patient advocacy groups is crucial for rare diseases, as it allows for a more holistic approach to treatment and care. Overall, Brynn's journey with CDD has taught Natalie to take things one day at a time and to cherish the silver linings in life.

    The Your Complex Brain production team is Heather Sherman, Jessica Schmidt, Dr. Amy Ma, Kim Perry, Sara Yuan, Meagan Anderi, Liz Chapman, and Lorna Gilfedder.

    The Krembil Brain Institute, part of University Health Network, in Toronto, is home to one of the world's largest and most comprehensive teams of physicians and scientists uniquely working hand-in-hand to prevent and confront problems of the brain and spine, such as Parkinson's, Alzheimer's, epilepsy, stroke, spinal cord injury, chronic pain, brain cancer or concussion, in their lifetime. Through state-of-the-art patient care and advanced research, we are working relentlessly toward finding new treatments and cures.

    Do you want to know more about the Krembil Brain Institute at UHN? Visit us at: uhn.ca/krembil

    To get in touch, email us at krembil@uhnresearch.ca or message us on social media:
    Instagram - @krembilresearch
    Twitter - @KBI_UHN
    Facebook - https://www.facebook.com/KrembilBrainInstitute

    Thanks for listening!

    Your Complex Brain
    en-usOctober 17, 2023

    Why Jack Conway is participating in a VR research trial to improve his vision after a brain tumour

    Why Jack Conway is participating in a VR research trial to improve his vision after a brain tumour

    Jack Conway, a 19-year-old from Toronto, Canada, is a huge fan of video games and roller coasters. His family includes his mom, Kim, his dad, Steve, and his older brother, Brian. Jack plays a variety of video games, from Call of Duty to Minecraft, and he loves roller coasters. 

    He also has a vision impairment due to a brain tumor he had when he was a baby. He was one of the first children in the world to receive a certain treatment for the tumor, and he spent a lot of time at SickKids hospital. School can be challenging for him because of his vision, but he tries not to let it get the better of him.

    He has done a vision study using virtual reality goggles, and it has improved his vision and quality of life. He is excited about the potential for technology to restore vision and is happy to have been accepted into all six college programs he applied for.

    The Your Complex Brain production team is Heather Sherman, Jessica Schmidt, Dr. Amy Ma, Kim Perry, Sara Yuan, Meagan Anderi, Liz Chapman, and Lorna Gilfedder.

    The Krembil Brain Institute, part of University Health Network, in Toronto, is home to one of the world's largest and most comprehensive teams of physicians and scientists uniquely working hand-in-hand to prevent and confront problems of the brain and spine, such as Parkinson's, Alzheimer's, epilepsy, stroke, spinal cord injury, chronic pain, brain cancer or concussion, in their lifetime. Through state-of-the-art patient care and advanced research, we are working relentlessly toward finding new treatments and cures.

    Do you want to know more about the Krembil Brain Institute at UHN? Visit us at: uhn.ca/krembil

    To get in touch, email us at krembil@uhnresearch.ca or message us on social media:
    Instagram - @krembilresearch
    Twitter - @KBI_UHN
    Facebook - https://www.facebook.com/KrembilBrainInstitute

    Thanks for listening!

    Your Complex Brain
    en-usOctober 03, 2023

    Lindsay Bongard-Batori on losing her mom Barbara to Alzheimer's

    Lindsay Bongard-Batori on losing her mom Barbara to Alzheimer's

    Lindsay's mother Barbara had Alzheimer's disease. Lindsay, her brothers, and her father noticed changes in her mid-sixties. They started noticing her repeating herself and she stopped coming to the pool with them when they went to visit her and their dad in Florida. She also forgot where she parked her car and had to ask for help. Her memory was not what it used to be and she started to withdraw from social events.

    Lindsay and her brothers decided they needed to talk to her doctor about these memory issues. They decided as a family that it was time to look into homes for her. They did not want to wait until it was an emergency and they had to put her into a home. They found a home that was dedicated to people with dementia and they were able to get her a room there. It was a very hard decision for Lindsay and her family. They had to depend on each other to take care of her. 

    Lindsay visited her every day and she felt like she was doing this for herself as well. It was very hard for Lindsay to see her mother like this. She missed being able to call her and tell her about her life. She wished her mother could see her kids grow up and experience life without her.

    The Your Complex Brain production team is Heather Sherman, Jessica Schmidt, Dr. Amy Ma, Kim Perry, Sara Yuan, Meagan Anderi, Liz Chapman, and Lorna Gilfedder.

    The Krembil Brain Institute, part of University Health Network, in Toronto, is home to one of the world's largest and most comprehensive teams of physicians and scientists uniquely working hand-in-hand to prevent and confront problems of the brain and spine, such as Parkinson's, Alzheimer's, epilepsy, stroke, spinal cord injury, chronic pain, brain cancer or concussion, in their lifetime. Through state-of-the-art patient care and advanced research, we are working relentlessly toward finding new treatments and cures.

    Do you want to know more about the Krembil Brain Institute at UHN? Visit us at: uhn.ca/krembil

    To get in touch, email us at krembil@uhnresearch.ca or message us on social media:
    Instagram - @krembilresearch
    Twitter - @KBI_UHN
    Facebook - https://www.facebook.com/KrembilBrainInstitute

    Thanks for listening!

    Your Complex Brain
    en-usSeptember 19, 2023

    What Lara Pingue wants you to know about living with chronic pain

    What Lara Pingue wants you to know about living with chronic pain

    Lara Pingue shares her story about living with chronic back pain and the challenges of getting a diagnosis and finding effective treatment. She describes the initial onset of her pain and the various treatments she tried, including physical therapy, chiropractic care, and prescription medications. 

    She also discusses the impact of the pain on her daily life and the frustration of not being able to find a lasting solution. Eventually, she decided to pursue surgery and was able to get a referral from her doctor. The surgery was not without complications, but it did provide some relief from her pain. 

    Since then, she has focused on managing her pain through a combination of movement and over-the-counter pain medication. She emphasizes the importance of believing people with chronic pain and destigmatizing treatment for it.

    The Your Complex Brain production team is Heather Sherman, Jessica Schmidt, Dr. Amy Ma, Kim Perry, Sara Yuan, Meagan Anderi, Liz Chapman, and Lorna Gilfedder.

    The Krembil Brain Institute, part of University Health Network, in Toronto, is home to one of the world's largest and most comprehensive teams of physicians and scientists uniquely working hand-in-hand to prevent and confront problems of the brain and spine, such as Parkinson's, Alzheimer's, epilepsy, stroke, spinal cord injury, chronic pain, brain cancer or concussion, in their lifetime. Through state-of-the-art patient care and advanced research, we are working relentlessly toward finding new treatments and cures.

    Do you want to know more about the Krembil Brain Institute at UHN? Visit us at: uhn.ca/krembil

    To get in touch, email us at krembil@uhnresearch.ca or message us on social media:
    Instagram - @krembilresearch
    Twitter - @KBI_UHN
    Facebook - https://www.facebook.com/KrembilBrainInstitute

    Thanks for listening!

    Your Complex Brain
    en-usSeptember 05, 2023

    How Nikki Ashworth's epilepsy diagnosis changed her life

    How Nikki Ashworth's epilepsy diagnosis changed her life

    As a child, Nikki experienced seizures that she did not realize were seizures. She would feel "other" and disconnected from the world. Her earliest seizure memory is from when she was six years old, triggered by looking out the window of her parent's house. She would sometimes go to the window to see if she would have a seizure.

    Today, her seizures are still the same as when she was a child. They last about a minute and are triggered by being outside. They start with a warming sensation in her lower abdomen and a feeling of over-familiarity. Then, she gets a radiating heat and nausea, which makes her cough. She then feels like she is being taken up a roller coaster and dropped. She can calculate how many seconds she has left in the seizure based on where the heat is in her body. After the seizure, she is fatigued but not confused. 

    She accepts the differences in her body and does not let them affect her daily life. She is grateful to not have to deal with the struggles that other people with epilepsy face. Having focal aware seizures has allowed her to learn more about herself and her brain.

    The Your Complex Brain production team is Heather Sherman, Jessica Schmidt, Dr. Amy Ma, Kim Perry, Sara Yuan, Meagan Anderi, Liz Chapman, and Lorna Gilfedder.

    The Krembil Brain Institute, part of University Health Network, in Toronto, is home to one of the world's largest and most comprehensive teams of physicians and scientists uniquely working hand-in-hand to prevent and confront problems of the brain and spine, such as Parkinson's, Alzheimer's, epilepsy, stroke, spinal cord injury, chronic pain, brain cancer or concussion, in their lifetime. Through state-of-the-art patient care and advanced research, we are working relentlessly toward finding new treatments and cures.

    Do you want to know more about the Krembil Brain Institute at UHN? Visit us at: uhn.ca/krembil

    To get in touch, email us at krembil@uhnresearch.ca or message us on social media:
    Instagram - @krembilresearch
    Twitter - @KBI_UHN
    Facebook - https://www.facebook.com/KrembilBrainInstitute

    Thanks for listening!

    Your Complex Brain
    en-usAugust 22, 2023

    Farrah Schwartz's take on stress and the importance of prioritizing your mental health

    Farrah Schwartz's take on stress and the importance of prioritizing your mental health

    Farrah Schwartz is the manager of Patient Education and Engagement at UHN. Her work entails assisting patients in actively participating in their care and improving organizational processes. The Patient Education and Engagement program provides resources, training, and coaching to help Team UHN engage patients in their care. They are also working on patient engagement within organizational improvement and partnering with equity-seeking groups to ensure that health information is inclusive and non-stigmatizing.

    Farrah has experienced stress throughout her life, including during the pandemic. She had a laser focus on her work and was able to channel her stress into something productive. Stress comes in many forms, and it is important to recognize and manage it. 

    Farrah recommends tuning into your mood, practicing self-compassion, and finding gratitude in small things. She has learned that it is not possible to do everything and that it is important to set realistic expectations.

    The Your Complex Brain production team is Heather Sherman, Jessica Schmidt, Dr. Amy Ma, Kim Perry, Sara Yuan, Meagan Anderi, Liz Chapman, and Lorna Gilfedder.

    The Krembil Brain Institute, part of University Health Network, in Toronto, is home to one of the world's largest and most comprehensive teams of physicians and scientists uniquely working hand-in-hand to prevent and confront problems of the brain and spine, such as Parkinson's, Alzheimer's, epilepsy, stroke, spinal cord injury, chronic pain, brain cancer or concussion, in their lifetime. Through state-of-the-art patient care and advanced research, we are working relentlessly toward finding new treatments and cures.

    Do you want to know more about the Krembil Brain Institute at UHN? Visit us at: uhn.ca/krembil

    To get in touch, email us at krembil@uhnresearch.ca or message us on social media:
    Instagram - @krembilresearch
    Twitter - @KBI_UHN
    Facebook - https://www.facebook.com/KrembilBrainInstitute

    Thanks for listening!

    Your Complex Brain
    en-usAugust 08, 2023