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    Rare Diseases

    Explore "Rare Diseases" with insightful episodes like "417. How to Manage Your Job, Your Company, Your Life | Derick Cooper", "Episode 204 - Portugal. The Man", "British Woman Fights for Life & Marxist Librarian | 9.16.23", "Reality of living with RA-ILD" and "Innovating today for patients of tomorrow" from podcasts like ""The Jordan B. Peterson Podcast", "The House of Pod: A Medical Podcast", "Morning Wire", "Journeys through pulmonary fibrosis" and "Journeys through pulmonary fibrosis"" and more!

    Episodes (10)

    417. How to Manage Your Job, Your Company, Your Life | Derick Cooper

    417. How to Manage Your Job, Your Company, Your Life | Derick Cooper

    Dr. Jordan B. Peterson speaks with the CEO of QOL Medical, Derick Cooper. They discuss how immunological systems confront pathogens and store information, the trait most associated with entrepreneurial success, the complicated patterns of behavior that scale from cellular interaction to metaphysics, and how a spirit of reciprocity can be utilized to uplift the individual as well as the community, society, and upward.

     

    Derick Cooper is the Chief Executive Officer of QOL Medical, LLC, a large, private specialty biopharmaceutical company that makes drugs and biologics for rare diseases. QOL is a commercial stage company founded in 2003 with fully integrated capabilities ranging from sales and marketing to drug development to bioprocess-based manufacturing. Prior to 2010, Cooper spent 16 years in investment banking, mergers and acquisitions, venture capital, corporate finance, and operations with The Robinson-Humphrey Company in Atlanta, as a portfolio manager with Sirrom Capital, formerly the largest mezzanine lender in the US, and with CooperSmith, formerly the largest independent baked foods company in the US.

     

    - Links -

     

    2024 tour details can be found here https://jordanbpeterson.com/events  

     

    Peterson Academy https://petersonacademy.com/

     

    For Derick Cooper:

     

    On X https://twitter.com/derick_cooper5

     

    QOL Medical website www.qolmed.com

    Episode 204 - Portugal. The Man

    Episode 204 - Portugal. The Man

    Kaveh is joined by John and Zoe, from the band Portugal The Man to discuss their daughter's rare neurodegenerative disorder and they're joined by Dr. Stan Crooke, who's started the n-Lorem foundation to help find treatments for ultra rare genetic diseases just like this. Take a listen to hear about the struggles of navigating health care for patients and families and the exciting new world of treatments opening up with ASOs (Anti-Sense Oligonucleotides).


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    Reality of living with RA-ILD

    Reality of living with RA-ILD
    In this special episode Liz tells us about her experience of living with RA-ILD, which is short for rheumatoid arthritis-associated interstitial lung disease. We explore the profound impact of this life-changing diagnosis on Liz and her loved ones as well as the need for increased awareness of the condition. Throughout Liz provides advice and strategies for maintaining a positive outlook despite the challenges RA-ILD presents.

    Innovating today for patients of tomorrow

    Innovating today for patients of tomorrow
    In this episode, we explore how innovating today could have a positive impact on those diagnosed with pulmonary fibrosis. We are joined by extraordinary guests, including researchers, healthcare providers, innovators, and a patient impacted by this rare disease. Keeping patients’ lived experiences front and center can help lead to new ideas and progress, all while inspiring us to remain hopeful for the future.

    Relationships

    Relationships
    In the fifth and final episode of season 3, we learn about the impact that pulmonary fibrosis can have on relationships with family and friends, and even on the more intimate aspects of partner relationships. Our contributors also take time to emphasize the value that they derive from healthy and supportive relationships when living with this challenging condition.

    Diet and nutrition

    Diet and nutrition
    In the second episode of Season 3 of our Journey Through Pulmonary Fibrosis podcast, we are once again joined by several people who live with the condition, including a wife and care partner, and by a group of specialists. Hear about some of the challenges that people with pulmonary fibrosis face in terms of meeting their dietary and nutritional needs and learn about how these challenges are best managed through tools and techniques like keeping a food diary and managing portion sizes.

    Mental Health

    Mental Health
    In the first episode of Season 3, we are joined by a courageous group of guests that includes people living with pulmonary fibrosis, a care partner, and specialized healthcare providers to explore the mental health impact of the disease. The discussion explores the impact of receiving a pulmonary fibrosis diagnosis and the ongoing challenges of living with the disease. Our guests share the mental and emotional challenges they face, as well as helpful tips on how to cope, where to find support and how they continue to find hope.

    Special episode: Childhood interstitial lung disease (chILD)

    Special episode: Childhood interstitial lung disease (chILD)
    Childhood interstitial lung disease (chILD) includes more than 200 rare disorders with debilitating symptoms that can include cough, difficulty breathing and rapid breathing. With no established diagnostic criteria, few management guidelines, and no approved therapies, chILD can have a devastating impact on patients and their loved ones. In this episode Dr. Robin Deterding, Director of the Breathing Institute, Children’s Hospital Colorado, speaks to Carlee Gilbert, mother of Finn, who is now aged 13, and Director of chILD Foundation UK, about her experience with raising her son with this condition. The episode explores the practical, emotional, and family challenges that chILD presents and offers advice to other parents facing this disease. Carlee describes how she found hope by dedicating her professional life to research and support for others, so they don’t feel alone in their journeys.